Embedded Files
Welcome! Tilly is our daughter, a very special, sweet, and snuggly girl who has had some very difficult challenges in her life, including upcoming brain surgery in August. Please feel free to explore the website to learn about Tilly, our family, and Tilly's life! The War talks about Aicardi Syndrome and an overview of Tilly's struggles, The Army introduces our family, and more details about different parts of Tilly's journey can be found under The Battles and its pages. To find out how you can help Tilly, please visit Join The Battle. We plan to post at least monthly updates on the Blog, and you can feel free to reach us on the Contact Us page! Thank you for visiting our site, and thank you for your love and generosity for our precious daughter!
Meet Tilly
Tilly, whose name means "Strength in Battle," has been a fighter since the day she was born. Even before we knew about her medical condition, we felt impressed to give her this name, as if it was a premonition of what was to come.
At three months old, Tilly was diagnosed with Aicardi Syndrome, a rare genetic disorder that affects mainly girls and causes a range of developmental and neurological problems. For Tilly, this meant severe seizures that required constant medical attention and intervention. Our lives were turned upside down as we faced the challenge of caring for a child with complex medical needs.
Tilly's journey has been filled with countless hospital stays, surgeries, and medical treatments, all of which come at a significant cost. As parents, we have done everything in our power to provide the best care for our daughter, but the financial burden has taken its toll on us.
This is where we need your help. We are reaching out to our community, friends, and family, to assist us in raising funds for Tilly's ongoing medical needs. Every donation, no matter how small, will make a difference in Tilly's life and help us provide her with the best care possible!
We are grateful for any support you can offer and for taking the time to visit our website! Together, we can help Tilly continue to fight her battles with strength and perseverance. Thank you for being a part of Tilly's journey!
Google Sites
Report abuse